Startups
Improving access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions.
Overview
Location
United States, District of Columbia, Washington
Phone
+1 202-599-4465
Mentions in press and media 10
| Date | Title | Description |
| Sign up to see | Sign up to see | Sign up to see |
| Aug 31, 2026 | Undiagnosed Diseases Network Foundation Named Patient Experience Partner for ARPA-H's Groundbreaking RAPID Program | The UDNF community coming together to take action for the undiagnosed. April 2026 UDNF to bring the voice and experiences of the undiagnosed community to a federal initiative aimed at transforming rare disease diagnosis. WASHINGTON, DC, UNI... |
| Apr 29, 2024 | UNDIAGNOSED DISEASES NETWORK FOUNDATION (UDNF) ENCOURAGES COLLABORATION ON UNDIAGNOSED DISEASES AWARENESS DAY 2024 | UDNF Partners with Wilhelm Foundation to Host 3rd Annual Undiagnosed Diseases Awareness Day Educational Event WASHINGTON, D.C., UNITED STATES, April 29, 2024 /EINPresswire.com/ -- The Undiagnosed Diseases Network Foundation (UDNF), a patien... |
| Apr 25, 2024 | UNDIAGNOSED DISEASES NETWORK FOUNDATION (UDNF) TO PRESENT TODAY AT THE WORLD ORPHAN DRUG CONGRESS 2024 | Nonprofit Speaks to “Building a Learning Healthcare Network for Innovation in Diagnosis and Precision Medicine in Rare Diseases” and Hosts Roundtable Discussion WASHINGTON, D.C., UNITED STATES, April 25, 2024 /EINPresswire.com/ -- The Undia... |
| Mar 19, 2024 | UNDIAGNOSED DISEASES NETWORK FOUNDATION (UDNF) CO-LEADS DISCUSSION ON MENTAL HEALTH AT THE 2024 RARE DISEASE SUMMIT | UDNF Emphasizes Commitment to Improving Patient Experiences for the Ultra-Rare and Undiagnosed WASHINGTON, DISTRICT OF COLUMBIA, UNITED STATES, March 19, 2024 /EINPresswire.com/ -- The Undiagnosed Diseases Network Foundation (UDNF), a patie... |
| Feb 28, 2024 | UNDIAGNOSED DISEASE NETWORK FOUNDATION (UDNF) ANNOUNCES ITS ATTENDANCE AT THE 2024 WHITE HOUSE RARE DISEASE FORUM | UDNF Continues to Lead Patient Advocacy Efforts for Undiagnosed and Ultra-Rare Disease Patients WASHINGTON, DISTRICT OF COLUMBIA, UNITED STATES, February 28, 2024 /EINPresswire.com/ -- The Undiagnosed Diseases Network Foundation (UDNF), a p... |
| Feb 6, 2024 | UNDIAGNOSED DISEASES NETWORK FOUNDATION (UDNF) LAUNCHES PATIENT NAVIGATION PROGRAM TO CONNECT PATIENTS WITH CARE EXPERTS | New Patient Resource Aims to Bridge the Expansive Care Gap that Undiagnosed and Ultra-rare Disease Patients Often Experience with Diagnosis and Treatment WASHINGTON, DISTRICT OF COLUMBIA, UNITED STATES, February 6, 2024 /EINPresswire.com/ -... |
| Jun 27, 2023 | Rare Disease Patient Advocates Gather in San Diego for a Week of Events to Connect, Learn, and Empower | Week in RARE events "We are creating an unparalleled opportunity for rare disease advocates to engage with each other, build relationships, and help them understand what they can do to change what it means to live with a rare disease d... |
| Apr 28, 2023 | Patient Advocacy Organizations Partner to Host Undiagnosed Day on April 29, 2023 | UDNF Logo Undiagnosed Day Logo Something more has to be done to solve these mysterious diseases. It's incredibly difficult to see your child so sick without the doctors being able to explain why.” — Helene Cederroth WASHINGTON, DC, USA, Apr... |
| Apr 18, 2023 | Undiagnosed Diseases Network Foundation Promotes Access and Equity for Undiagnosed and Ultra-Rare Disease Patients | The UDNF's logo Amy Gray, CEO of the new UDNF New nonprofit organization aims to improve access to diagnosis, research, and care for all with undiagnosed and ultra-rare diseases. The Foundation will help ensure that patients have access not... |
Reviews 0
FAQ about Undiagnosed Diseases Network Foundation
What has the press written about Undiagnosed Diseases Network Foundation?
Parsers VC has collected 10 articles mentioning Undiagnosed Diseases Network Foundation, among them “Undiagnosed Diseases Network Foundation Named Patient Experience Partner for ARPA-H's Groundbreaking RAPID Program” (Aug 31, 2026) and “UNDIAGNOSED DISEASES NETWORK FOUNDATION (UDNF) ENCOURAGES COLLABORATION ON UNDIAGNOSED DISEASES AWARENESS DAY 2024” (Apr 29, 2024).
Is Undiagnosed Diseases Network Foundation still active?
Yes, Undiagnosed Diseases Network Foundation is active; its latest activity on Parsers VC dates from Aug 31, 2026.