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https://www.rettsyndrome.org/
International Rett Syndrome Foundation
TrustedLast activity: 10.09.2026
Active
Our vision is to create a world without Rett syndrome.
Overview
Location
United States, Ohio, Blue Ash
Employees
11-50
Phone
+1 800-818-7388
Founded date
2007
Mentions in press and media 18
| Date | Title | Description |
| Sign up to see | Sign up to see | Sign up to see |
| Aug 25, 2026 | Males Have Rett Syndrome Too. IRSF is Launching a $1 Million Fund to Make Sure Rett Research Includes Them. | Mary and Richard Engel with their son, Henry The Otis Family with their son, Barrett, who lives with Rett syndrome The fund targets barriers keeping males with Rett from timely diagnosis, appropriate care, clinical trial inclusion, and acce... |
| Feb 24, 2026 | International Rett Syndrome Foundation Funds First Longitudinal Presymptomatic Biomarker Study in Rett Syndrome | IRSF investment positions organization at the forefront of early-stage Rett research as genomic medicine reshapes rare disease diagnosis. This is a defining moment for Rett research. Genetic testing is changing when families receive answers... |
| Oct 28, 2025 | International Rett Syndrome Foundation Launches Family Listening Sessions to Strengthen Support for Rett Community | New initiative invites parents and caregivers to share their experiences, ensuring that programs and resources reflect the real needs of families. These conversations are an important part of how we continue building a stronger, more connec... |
| Jun 11, 2025 | International Rett Syndrome Foundation Expands Executive Team to Meet the Moment for the Rett Community | IRSF Logo Dominique Pichard, MD Staci Almager Dominique Pichard, M.D., returns as Chief Science Officer, and Staci Almager joins as Chief Development Officer. As the mother of an individual with Rett, I'm honored to rejoin this community at... |
| May 6, 2025 | International Rett Syndrome Foundation Expands Scientific Advisory Board with Three Leading Experts | Harrison Gabel and Steven Gray Kathie Bishop Renowned leaders in neuroscience, gene therapy, and translational research join IRSF to accelerate progress in Rett syndrome treatments and cures. With the addition of Drs. Bishop, Gabel, and Gra... |
| Aug 21, 2024 | International Rett Syndrome Foundation Welcomes Parthy Evans and Steve Marconi to Board of Directors | Parthy Evans, Esq. Steve Marconi, CPA Their extensive professional expertise, combined with their personal connections to Rett syndrome, make them uniquely suited to help drive our mission forward.” — Melissa Kennedy, IRSF CEOCINCINNATI, OH... |
| Jul 2, 2024 | International Rett Syndrome Foundation Announces Expansion of Scientific Leadership | Dr. Nupur Garg, VP of Research at IRSF Dr. Drew Jones, newly appointed VP of Clinical Development at IRSF The new leadership appointments include a key promotion and new hire to advance research and clinical development for Rett syndrome. W... |
| Jul 18, 2023 | International Rett Syndrome Foundation Unveils My Rett Ally to Support Caregivers of Individuals with Rett Syndrome | The My Rett Ally web app, powered by mejo, is a new resource to support caregivers of individuals with Rett syndrome. My Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simpl... |
| Mar 11, 2023 | International Rett Syndrome Foundation Celebrates FDA Approval of Trofinetide for Treatment of Rett Syndrome | This is truly a historic day for the Rett syndrome community.” — Melissa Kennedy, IRSF CEOCINCINNATI, OHIO, UNITED STATES, March 11, 2023 /EINPresswire.com/ -- The International Rett Syndrome Foundation (IRSF) today joined with the entire R... |
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FAQ about International Rett Syndrome Foundation
When was International Rett Syndrome Foundation founded?
International Rett Syndrome Foundation was founded in 2007.
What has the press written about International Rett Syndrome Foundation?
Parsers VC has collected 18 articles mentioning International Rett Syndrome Foundation, among them “Males Have Rett Syndrome Too. IRSF is Launching a $1 Million Fund to Make Sure Rett Research Includes Them.” (Aug 25, 2026) and “International Rett Syndrome Foundation Funds First Longitudinal Presymptomatic Biomarker Study in Rett Syndrome” (Feb 24, 2026).
Is International Rett Syndrome Foundation still active?
Yes, International Rett Syndrome Foundation is active; its latest activity on Parsers VC dates from Sep 10, 2026.