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| Jul 24, 2026 | Космос как ускоренная лаборатория старения | Представьте машину времени. Не ту, что переносит в прошлое или будущее, а ту, что ускоряет ваши собственные биологические часы прямо сейчас. Садитесь внутрь, проводите в ней год и выходите с телом, которое прошло через изменения, характерны... |
| Apr 28, 2026 | Nuevocor Appoints Dr. Monica Shah as Chief Medical Officer | SINGAPORE, PARIS and PHILADELPHIA, April 28, 2026 /PRNewswire/ -- Nuevocor, a clinical-stage biotechnology company developing novel therapies for patients suffering from life-threatening cardiomyopathies, today announced the appointment of ... |
| Jul 30, 2025 | FROM THE ALZHEIMER'S ASSOCIATION INTERNATIONAL CONFERENCE 2025: SNAP BENEFITS LINKED TO SLOWER COGNITIVE DECLINE, 10-YEAR STUDY FINDS | Key Takeaways
Participating in the Supplemental Nutrition Assistance Program (SNAP) may help protect against age-related cognitive decline, suggests an analysis of a national study.
Compared to non-participants, SNAP participants had a slow... |
| Aug 27, 2024 | Houston oncology therapeutics co. raises $11.4M in seed funding | A Houston-based, clinical-stage immuno-oncology company has raised an oversubscribed round of seed funding.
Diakonos Oncology Corp. closed its seed round to the tune of $11.4 million. The funding will go toward supporting the company's Phas... |
| Aug 21, 2024 | Pioneering Progress in Pediatric Oncology and Healthcare Analytics | In the ever-evolving landscape of healthcare, two recent breakthroughs shine a light on the potential for innovation to transform patient outcomes. Phrase Health, a trailblazer in electronic health record (EHR) workflow management, has secu... |
| Aug 20, 2024 | Blood Platelet Score Detects Previously Unmeasured Risk of Heart Attack and Stroke | NEW YORK, Aug. 20, 2024 /PRNewswire/ -- Platelets are circulating cell fragments known to clump up and form blood clots that stop bleeding in injured vessels. Cardiologists have long known that platelets can become "hyperreactive"... |
| Aug 20, 2024 | Phrase Health Secures NIH SBIR Funding to Advance Innovative Analytics Solutions | Phrase Health, Inc. secures $2M NIH SBIR grant to develop innovative EHR workflow management solutions, advancing patient care through data-driven, continuous improvement.
PHILADELPHIA, Aug. 20, 2024 /PRNewswire-PRWeb/ -- Phrase Health, Inc... |
| Apr 29, 2024 | Newborn Screening Emergency: Urgent Call for Action to Identify 10,000+ Undiagnosed Rare Diseases | RARE PRS #12
The push for a transformative U.S.-India partnership in newborn screening (NBS) sets the stage for a seismic shift in tackling rare diseases, spotlighting the need to prepare for the digital AI revolution in global healthcare. ... |
| Jan 5, 2024 | Urgent vs. Emergent: Alleviating Overcrowded Emergency Room Pressures | Visit volumes within hospital emergency departments (ED) have skyrocketed, leading to long wait times, and burnt-out emergency department (ED) providers, and staff, adding incredible stress to an already challenged healthcare system.
Many f... |
| Aug 8, 2023 | Loss of smell or taste was once a telltale sign of COVID. Not anymore. | Once a hallmark sign of many COVID-19 cases — sometimes more reliable than even flu-like symptoms at sniffing out people infected by the virus early in the pandemic — was the sudden loss of smell and taste. But growing research suggests thi... |
| Oct 28, 2022 | FDA CDER & NIH NCATS Regulatory Fitness in Rare Disease Clinical Trials Workshop - 05/16/2022 | On This Page
Date: May 16 - 17, 2022 Day1: Mon, May 16 9:00 AM - 4:00 PM ET Day2: Tue, May 17 9:00 AM - 12:00 PM ET Background and Meeting Objectives
On May 16 and 17, 2022, the FDA’s Center for Drug Evaluation and Research (CDER) and NIH’s... |
| Oct 24, 2022 | Meeting the needs of rare disease patients: Improved access to specialty pharmaceuticals, gene and cell therapies | Anyone who steps into the shoes of a person with a rare disease will experience not only the disheartening prospects of deteriorating health but also the pressure to arrange for effective treatment sooner and prevent morbidity and mortality... |
| Sep 29, 2022 | Palantir renews a key Trump-administration contract with a $65 million deal to support the National Institutes of Health's cloud databases for HIV/AIDS and COVID-19 | A nurse gives a fourth dose of the COVID-19 vaccine in Madrid on Monday. Alejandro Martinez Velez/Europa Press via Getty Images
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| May 26, 2022 | CAARE Joins Inaugural ‘World Day of Animal Free Research’ on May 27; Notes U.S. Legislation to Remove FDA’s Animal Testing Mandate | “Cutting-edge technology has forged new frontiers in biology and medicine that have produced human-relevant models that can replace animals. It is time for federal funding and regulation to keep pace with scientific innovation by investing ... |
| Mar 17, 2022 | Relapsing Polychondritis Patients, Advocates, and Researchers Emphasize Awareness and Collaboration During Rare Disease Day 2022 at the National Institutes of Health | NEW YORK (PRWEB) March 17, 2022
The National Institutes of Health (NIH) Clinical Center held its annual event, Rare Disease Day at the NIH, on February 28, 2022. The virtual event, co-sponsored by the National Center for Advancing Translati... |
| Jan 25, 2022 | Phase and Virginia Tech partner to advance microfluidic 3D printing | Insiders and analysts predict the 3D printing trends to watch in our latest series of articles focused on the future of 3D printing.
Phase Inc, a North Carolina-based medical 3D printing startup, has partnered with Virginia Tech to advance ... |
| Sep 27, 2021 | How to rescue Big Pharma drug castoffs from the scrap bin through nonprofit partnerships: report | If a potentially promising treatment sits idle in a Big Pharma's stockroom, shouldn’t patients have access to it?
That’s a question asked by nonprofit think tank The Milken Institute, which is out with a new report Friday pitching a path fo... |
| Sep 14, 2021 | Aduhelm backlash threatens to reverse progress in FDA’s reviews of rare and ultra-rare disease drugs | The FDA’s approval of Aduhelm to treat Alzheimer’s disease has unleashed criticism about the decision and calls for reform within the agency. As advocates for people living with Barth syndrome — an ultra-rare, life-threatening genetic condi... |
| Aug 18, 2021 | Scientific, moral imperatives underlie including rare disorders in the ARPA-H mandate | The response to Covid-19 by the biomedical research community in the U.S. and around the globe has been spectacular in both speed and impact. It is time to respond with the same sense of urgency to every disease. Toward that end, President ... |
| May 14, 2021 | Unmasking The Covid Realities - The CDC Still Needs To Find The Data | Mark Twain famously said: Get your facts first, and then you can distort them as much as you please. As if to stand these words on their head, the US Covid-19 response has been an exercise in selective data collection. This is not only hubr... |
| Nov 19, 2020 | SpaceX’s meteoric mission to fly 4 astronauts to the space station, in 17 photos and gifs | The Crew Dragon spaceship approaches the International Space Station on November 16, 2020. NASA
SpaceX launched its first full astronaut crew for NASA on Sunday.
NASA astronauts Mike Hopkins, Victor Glover, Shannon Walker, as well as Japane... |
| Nov 17, 2020 | SpaceX’s Resilience spaceship autonomously docked to the space station with 4 astronauts inside, kicking off a historic mission for NASA | The Crew Dragon spaceship seen docked to the International Space Station on Monday as the NASA astronaut Kate Rubins carried out hatch-opening procedures. NASA TV
SpaceX on Sunday launched its first operational mission into orbit for NASA, ... |
| Aug 20, 2019 | FDA should use its existing program to qualify new tools for drug safety testing | The field of toxicology — determining whether a product is safe or harmful — is evolving rapidly. Many innovative drug safety technologies based on human biology, rather than the biology of other animals, are available for assessing whether... |
| May 6, 2019 | You’ve heard of ‘organs on a chip.’ Now ‘tissue chips in space’ test conditions in microgravity | An unusual bit of cargo was aboard the latest Space X mission to restock the International Space Station with essential supplies in the early hours of Saturday morning.
Usually, these SpaceX launches carry clothes or equipment that astronau... |
| Jul 6, 2017 | New U-M Grant Funding Will Advance Clinical Research, Train Teachers | Share Share on Facebook Share on Twitter LinkedIn Email Reprints
Two new grant programs administered by the University of Michigan aim to improve health and education for residents of the Great Lakes State.
One, in partnership with automoti... |
| Apr 3, 2017 | Cydan Development Announces the Acquisition of Its First Rare Disease Spin-out, Vtesse, Inc. by Sucampo Pharmaceuticals, Inc. | Link to Release
Cambridge, Mass., April 3, 2017 – Cydan Development, Inc., an orphan drug accelerator dedicated to creating therapies that improve the lives of people living with rare genetic diseases, today announces that Vtesse, Inc., ... |
| Feb 18, 2015 | The Precision Medicine Initiative: A child-centered perspective | By Patrice Milos
A child is sick, showing symptoms her parents cannot identify. Something is seriously wrong, but what? The family turns to Boston Children’s Hospital for answers. Yet, even with today’s medical advances, a precise diagnosis... |
| Aug 25, 2014 | Beyond the ice bucket: Orphan disease patient advocates you should follow on Twitter | [Photo from Flickr user Kymberly Janisch]
Promoted
This Patient Experience Checklist Is Your Key To Success in 2021
As healthcare systems strive to recover from losses due to the pandemic, patient acquisition and retention have never been m... |
| Jul 8, 2014 | Organ-on-a-chip maker Nortis gearing up for 2015 product launch | “The whole lab-on-a-chip concept is pretty hot right now,” Neumann said. “We really want to give researchers and drug developers a better tool to bring drugs to the clinic much faster.”
Nortis “came up with some tricks,” Neumann said, to cr... |
| Jul 1, 2014 | Why lean may save your life | The I-Corps @ NIH
Recently, the National Institutes of Health announced they are offering my Lean LaunchPad class (I-Corps @ NIH ) to commercialize Life Science.
There may come a day that one of these teams makes a drug, diagnostic or medic... |
| Jun 19, 2014 | How lean-startup ideology could save your life | Today the National Institutes of Health announced they are offering my Lean LaunchPad class (I-Corps @ NIH) to commercialize the life sciences. There may come a day that one of these teams makes a drug, diagnostic, or medical device that sa... |
| Apr 24, 2014 | SpeSo Health offers direct scheduling with Penn Medicine’s cancer specialists | SpeSo Health wants to support the 25 million U.S. patients with rare diseases every step of the way. That means offering a direct scheduling line to rare disease specialists, the first being those at Penn Medicine’s Abramson Cancer Center.
... |
| Feb 5, 2014 | Orphan drug startups are on a roll: Texas biopharma nabs $14M for rare autism disorder | But the candidate is still in preclinical studies. Lumos says it will use the new funding to support preclinical and clinical development of the drug, which has already received orphan designation from the FDA. It’s working with researchers... |
| Jan 28, 2014 | Lean launchpad and healthcare startups: Sometimes teams win when they fail | This post is part of our series on the National Science Foundation I-Corps Lean LaunchPad class in Life Science and Health Care at UCSF. Doctors, researchers and Principal Investigators in this class got out of the lab and hospital talked t... |
| Jan 7, 2014 | Lean launchpad and life science entrepreneurs: Lessons learned in therapeutics | This post is part of our series on the National Science Foundation I-Corps Lean LaunchPad class in Life Science and Health Care at UCSF. Doctors, researchers and Principal Investigators in this class got out of the lab and hospital talked t... |
| Nov 18, 2013 | Life science innovations: How are computers and robots helping pharma R&D? | One notes that in June, the U.S. Food and Drug Administration and the European Medicines Agency endorsed a simulator from the Critical Path Institute to help develop Alzheimer’s disease treatments. Additional simulators are in the works for... |
| Nov 16, 2012 | 8 things pharmaceutical companies can do to ensure their survival | Develop better reward system It would be better for drug companies to use a measurement system that combines financial and non-financial metrics (like motivation and commitment), the report notes. That system should also be flexible enough ... |
| Oct 24, 2012 | Let’s build a drug! Biopharma startup launches crowdsourcing tool to pick compounds | Please review the list and identify the compounds you believe have potential for further development. Once you have reviewed enough information to assess the compound, complete an Indication Finder for each compound of interest, telling us ... |
| Let’s build a drug! Biopharma startup launches crowdsourcing tool to pick compounds | A biopharma startup believes that when it comes to deciding what conditions it should develop drugs to treat, the decision should be left to a public vote.
New York based Transparency Life Sciences has launched a second crowdsourcing tool t... |
| Orphan drug startups are on a roll: Texas biopharma nabs $14M for rare autism disorder | In yet another example of industry’s growing interest in orphan drugs, a small Texas startup secured an impressive Series A to ramp up its work on a treatment for a rare disease called CTD.
Life science investors Sante Ventures and New Ente... |
| 8 things pharmaceutical companies can do to ensure their survival | In order to continue to be viable in the next decade, the pharmaceutical industry is adapting in ways that might seem surprising just a few years ago. The pressure to reduce costs coupled with the need to be more innovative and still comply... |
| Gene therapy: The future made present for addressing rare diseases
| Almost 20 years following the completion of the Human Genome Project — a historic scientific achievement that resulted in generating the first sequence of the human genome — gene therapy is no longer a futuristic vision. It is the medicine ... |
| Lean launchpad and healthcare startups: Sometimes teams win when they fail | This post is part of our series on the National Science Foundation I-Corps Lean LaunchPad class in Life Science and Health Care at UCSF. Doctors, researchers and Principal Investigators in this class got out of the lab and hospital talked t... |
| Life science innovations: How are computers and robots helping pharma R&D? | With the cost of drug development hitting the $5 billion mark and 94 percent of drugs failing at some point in clinical development, pharmaceutical companies have been turning to new tools to help clinical trial design: computers and robots... |
| Beyond the ice bucket: Orphan disease patient advocates you should follow on Twitter | The viral marketing campaign for ALS known as the ice bucket challenge has boosted the profile of rare disease philanthropy and permeated pop culture in a way that orphan diseases typically don’t, from the sublime to the ridiculous. Of cour... |
| Organ-on-a-chip maker Nortis gearing up for 2015 product launch | Seattle organ-on-a-chip maker Nortis is gearing up to launch a microfluidic product to help pharma researchers reduce the error, cost and suffering that can come with animal testing. The company projects it’ll have an organ-mimicking produc... |
| Lean launchpad and life science entrepreneurs: Lessons learned in therapeutics | This post is part of our series on the National Science Foundation I-Corps Lean LaunchPad class in Life Science and Health Care at UCSF. Doctors, researchers and Principal Investigators in this class got out of the lab and hospital talked t... |
