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Myotonic Dystrophy Foundation

https://www.myotonic.org/
Last activity: 15.09.2026
Active
Categories: Care
The Myotonic Dystrophy Foundation is uniting the DM community to improve care and accelerate progress towards a cure.
Mentions
3

Mentions in press and media 3

DateTitleDescription
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Jul 17, 2026Myotonic Dystrophy Foundation Chair Jeremy Kelly Awarded OBE by King Charles IIIJeremy Kelly, Board Chair and Lifetime Trustee of the Myotonic Dystrophy Foundation, displays his OBE insignia following his June 2026 investiture at Windsor Castle, recognizing more than two decades of service to the global myotonic dystro...
Jul 2, 2025Record-Setting 125,000-Mile Motorcycle Ride Puts Myotonic Dystrophy on the MapPat Cornell rolls through Portland, ME on his record-breaking 125,000-mile motorcycle journey—raising critical awareness for myotonic dystrophy (DM), a progressive, inherited disease affecting more than 150,000 Americans. With friends and f...

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FAQ about Myotonic Dystrophy Foundation

What has the press written about Myotonic Dystrophy Foundation?

Parsers VC has collected 3 articles mentioning Myotonic Dystrophy Foundation, among them “Myotonic Dystrophy Foundation Chair Jeremy Kelly Awarded OBE by King Charles III” (Jul 17, 2026) and “Record-Setting 125,000-Mile Motorcycle Ride Puts Myotonic Dystrophy on the Map” (Jul 2, 2025).

Is Myotonic Dystrophy Foundation still active?

Yes, Myotonic Dystrophy Foundation is active; its latest activity on Parsers VC dates from Sep 15, 2026.