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The Multiple System Atrophy Coalition
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The Multiple System Atrophy Coalition

https://www.multiplesystematrophy.org/
Last activity: 25.03.2024
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Categories: BuildingCauseCharityEdTechHealthTechITLifeLivingNonprofitResearch
The Multiple System Atrophy (MSA) Coalition® is a 501(c)3 organization with a 30-year history of devotion to improving the quality of life and building hope for people living with MSA. The MSA Coalition is devoted to a four-pillar mission as it fights a rare and terminal neurodegenerative disorder: - Supporting patients and caregivers affected by multiple system atrophy - Educating patients, caregivers and healthcare professionals - Financing and encouraging meaningful research toward identifying a cause and finding a cure for MSA - Advocating for issues important to the MSA community, including creating greater awareness Support, education, research and advocacy are important because multiple system atrophy is a rare disorder. It is estimated that fewer than 15,000 Americans are currently diagnosed with MSA; though perhaps as many as 35,000 more have MSA but are not diagnosed. Few physicians have any knowledge of MSA, leading to prolonged time for an accurate diagnosis. Currently the cause of MSA is unknown and a cure is desperately needed. Donations can be made at www.multiplesystematrophy.org/donate.
Followers
1.96K
Followers
766
Website visits
15.7K /mo.
Mentions
5

Overview

Location
United States, Virginia, Tysons
Employees
51-200
Phone
+1 866-737-4999
Founded date
1989

Mentions in press and media 5

DateTitleDescription
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Dec 14, 2022The Multiple System Atrophy Coalition Surpasses $3.5 Million in Total MSA Research FundingThe Multiple System Atrophy (MSA) Coalition, the leading nonprofit funder of global MSA research, announced that the organization has reached the milestone of investing more than $3.5 million in total MSA research funding since 2013. The MS...
Dec 14, 2022The Multiple System Atrophy Coalition Surpasses $3.5 Million in Total MSA Research FundingThe grants support a large diversity of basic and clinical research conducted by the best primary investigators on the globe committed to find a cure for MSA. MCLEAN, Va. (PRWEB) December 14, 2022 The Multiple System Atrophy (MSA) Coalition...
Feb 8, 2022The Multiple System Atrophy Coalition Welcomes New Members to Leadership in 2022"Dr. Wenning is a leader in advancing MSA research, and Adrienne has significant experience in providing patient and family support. Their energy and expertise will help the Coalition to fulfill our mission." MCLEAN, Va. (PRWEB) F...
Feb 25, 2021MSA Coalition Announces Prime Sponsorship of 2021 International Congress of Multiple System AtrophyMCLEAN, Va. (PRWEB) February 25, 2021 As part of its commitment to promote global awareness and research on multiple system atrophy, the MSA Coalition is a Prime Sponsor of the 7th International Congress of Multiple System Atrophy. The Cong...

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FAQ about The Multiple System Atrophy Coalition

When was The Multiple System Atrophy Coalition founded?

The Multiple System Atrophy Coalition was founded in 1989.

What has the press written about The Multiple System Atrophy Coalition?

Parsers VC has collected 5 articles mentioning The Multiple System Atrophy Coalition, among them “The Multiple System Atrophy Coalition Surpasses $3.5 Million in Total MSA Research Funding” (Dec 14, 2022) and “The Multiple System Atrophy Coalition Surpasses $3.5 Million in Total MSA Research Funding” (Dec 14, 2022).

Is The Multiple System Atrophy Coalition still active?

Yes, The Multiple System Atrophy Coalition is active; its latest activity on Parsers VC dates from Mar 25, 2024.