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| Aug 16, 2025 | Things to do in Boulder Saturday, Aug. 16: Lafayette Peach Fest will be slinging some juicy ones | Boulder Fire Department Beer Release: 1 p.m. Saturday, Twisted Pine Brewing Company, 3201 Walnut St., Boulder. Twisted Pine Brewing Co. is collaborating with the Boulder Fire Department (BFD) Local 900 team for this event to fill the boot f... |
| Jun 5, 2025 | Moore Receives Regional Emmy Award Nomination and 17 Telly Awards for Excellence in Production and Storytelling | Moore Receives Regional Emmy Award Nomination and 17 Telly Awards for Excellence in Production and Storytelling
Recognitions highlight Moore's commitment to storytelling, innovation, and impact in visual media.
WASHINGTON, June 5, 2025 /PRN... |
| Jan 15, 2025 | Increasing Participation in Muscular Dystrophy Clinical Trials | Michel van Harten M.D., CEO of myTomorrows
Muscular Dystrophy (MD) refers to a group of rare genetic conditions that cause progressive muscle weakness and degeneration in patients. Some forms of MD, such as Duchenne Muscular Dystrophy (DMD)... |
| Dec 16, 2024 | The Association Podcast: Illuminating Association Leadership and Innovation | The Association Podcast
Hosted by Jake Toohey, Ben Muscolino, and Gretchen Steenstra, The Association Podcast delivers expert insights on leadership, innovation, and association trends. Stream it on Apple Podcasts, Spotify, and Google Podca... |
| Dec 16, 2024 | Muscular Dystrophy Association Announces Over $5 Million in Research Grants to Advance Neuromuscular Disease Research | New York, Dec. 16, 2024 (GLOBE NEWSWIRE) -- The Muscular Dystrophy Association (MDA) announced today the awarding of 21 new grants with a total funding commitment of over $5 million toward neuromuscular disease research. These grants, recom... |
| Jul 27, 2024 | Moore's Marketing Revolution: A New Era for Purpose-Driven Fundraising | In the bustling world of fundraising, where every dollar counts, innovation is the lifeblood of success. Moore, a titan in constituent experience management, is leading the charge with its groundbreaking solutions. Recently, the company unv... |
| Jul 25, 2024 | Moore Named Agency of Record for Muscular Dystrophy Association | Moore
MDA to optimize its fundraising strategy with Moore's industry-leading data, AI technology and constituent marketing platform.
WASHINGTON, July 25, 2024 /PRNewswire-PRWeb/ -- oore, a leading constituent experience management company, ... |
| Mar 25, 2024 | Burn Boot Camp and Muscular Dystrophy Association Team Up for 8th Annual 'Be Their Muscle' Philanthropic Event | Over 350 Burn Boot Camp locations in 41 states will come together to help raise money and awareness for Muscular Dystrophy Association.
Charlotte, North Carolina, March 25, 2024 (GLOBE NEWSWIRE) -- Burn Boot Camp, a leading boutique fitness... |
| Mar 13, 2024 | NFL Running Back Nyheim Hines Supports Nation's Largest St. Patrick’s Day Fundraising Campaign to Benefit Muscular Dystrophy Association | |
| Mar 6, 2024 | Capricor Therapeutics Presents at 2024 Muscular Dystrophy Association (MDA) Clinical & Scientific Conference | |
| Jan 15, 2024 | Genetic Medicines Biotech Dyne Pulls In $345M for Clinical Tests of Muscle Drugs | Dyne Therapeutics started the new year with proof-of-concept clinical data for experimental genetic medicines addressing two rare muscle diseases—one of which has no FDA-approved treatments. Now the biotech has $345 million as it looks towa... |
| Dec 21, 2023 | Muscular Dystrophy Association Announces Acosta Group’s Historic $100 Million Fundraising Milestone | |
| Oct 24, 2023 | Lululemon founder Chip Wilson takes 2 popular longevity drugs — and flies to Mexico for stem cell injections — to try to stave off his muscular dystrophy | Health Lululemon founder Chip Wilson takes 2 popular longevity drugs — and flies to Mexico for stem cell injections — to try to stave off his muscular dystrophy
Hilary Brueck
2023-10-23T21:01:53Z
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S... |
| Jul 31, 2023 | 3 Vibes To Avoid In Disability Campaigns | 3 Vibesgetty |
| Jul 7, 2023 | Illuminating Hope: Celestial and Drone Show Technologies Highlight the Strength of Individuals Living with Muscular Dystrophy | SPH Engineering, a leading expert in drone technologies development, proudly showcases the remarkable use of Drone Show Technologies by Celestial Drones. In a recent drone show titled "HUMBLE COURAGE," Celestial Drones demonstrate... |
| Dec 15, 2022 | Charcot-Marie-Tooth Research Foundation and Muscular Dystrophy Association Announce Joint Research Study Grant | NEW YORK, NY, USA, December 15, 2022 /EINPresswire.com/ -- The Muscular Dystrophy Association (MDA) and Charcot-Marie-Tooth Research Foundation (CMTRF) announce joint funding for a study by Alessandra Bolino, Ph.D., at San Raffaele Hospital... |
| Nov 8, 2022 | Austin-Based Inspirational Hip Hop Artist With Duchenne Muscular Dystrophy To Host “Ryan’s Day” Annual Concert & Family Fun Event – Sun. Nov. 13th, 2022 | "Inspiration on Wheelz" is committed to raising public awareness through education, music, and annual event "Ryan's Day" to help find a cure for Duchenne Muscular Dystrophy. “As long as Ryan goes on, we go on, and the sh... |
| Jan 19, 2022 | PTC Therapeutics Announces Launch of 8th Annual STRIVE Awards Program to Fund Initiatives Benefitting the Duchenne Muscular Dystrophy Community | SOUTH PLAINFIELD, N.J. - PTC Therapeutics, Inc. (NASDAQ: PTCT) announced the launch of the eighth annual STRIVE awards program for Duchenne muscular dystrophy (Duchenne). Through this program, PTC provides grants to patient advocacy organiz... |
| Oct 18, 2021 | HILA approves access to Translarna™ the first treatment approved for the underlying cause of childhood muscle wasting disease | HILA approves access to Translarna™ the first treatment approved for the underlying cause of childhood muscle wasting disease Mon, Oct 18, 2021 06:00 CET
- Decision by the Finnish Pharmaceuticals Pricing Board (HILA) means access for ambula... |
| Sep 16, 2021 | Recall report: Children's auto-immune disease drug contaminated with mold and yeast | A drug used to treat an auto-immune disease in children has been voluntarily recalled by drugmaker Jacobus Pharmaceutical after reports of the tablets being contaminated with yeast, mold and aerobic bacteria.
Th... |
| Sep 13, 2021 | ‘Aisles of Smiles’ campaign | The United Family will once again participate in the Muscular Dystrophy Association’s annual Aisles of Smiles campaign to raise money in the fight against neuromuscular disease through Sept. 28.
All United Supermarkets, Market Street, Alber... |
| Aug 30, 2021 | Muscular Dystrophy Association Kicks Off National Muscular Dystrophy Awareness Month Announcing Access Survey Data, Community Education, and Events | |
| Aug 26, 2021 | Muscular Dystrophy Association Announces Its Inaugural MDA Takes Vegas Stream-a-thon Labor Day Weekend | |
| Aug 10, 2021 | Muscular Dystrophy Association Launches Quest Podcast with Mindy Henderson | |
| Jul 27, 2021 | Jiffy Lube® and Muscular Dystrophy Association Celebrate 10th Annual Fundraising Campaign to Support the Neuromuscular Community | |
| Jun 16, 2021 | MDA Launches Pinup & Roundup Campaigns at Thousands of Retail Partner Locations Nationwide to Fund Virtual Summer Camp for Kids 8-17 Living with Muscular Dystrophy & Related Neuromuscular Diseases | |
| Jun 15, 2021 | Muscular Dystrophy Association Releases New PSA Campaign with Indianapolis Colts Running Back Nyheim Hines | |
| Jun 14, 2021 | Muscular Dystrophy Association Launches Quest Podcast Hosted By Motivational Speaker and Author Mindy Henderson | |
| Jun 1, 2021 | Play with a Pro! Nyheim Hines, NFL Indianapolis Colts Running Back Joins MDA Let's Play Gaming Community on June 12 from 7-8pm for Game Night | |
| Apr 26, 2021 | Muscular Dystrophy Association Announces Community Education & Fundraising Events To Find a Cure for ALS | |
| Apr 22, 2021 | Muscular Dystrophy Association's National Ambassador Ethan LyBrand to be featured in Verizon's National Ad Campaign Airing on the Oscars | |
| Apr 21, 2021 | Registration opens for Virtual MDA Summer Camp for Children with Neuromuscular Diseases | |
| Apr 13, 2021 | The Boot Is Back! International Association of Fire Fighters Launches 2021 Fill the Boot Fundraisers for the Muscular Dystrophy Association | |
| Apr 6, 2021 | MDA Names 2021 National Ambassador Keisha Greaves as Spokesperson for Neuromuscular Community | |
| Mar 22, 2021 | Golf Events Bring Lifesaving Funds for Research & Care for 300,000+ Families Living with Disabilities Including Muscular Dystrophy, ALS and Over 40 Related Neuromuscular Diseases | |
| Mar 3, 2021 | Parent Project Muscular Dystrophy Awards $348,891 Grant to University of Florida Wellstone Center | |
| Feb 16, 2021 | Muscular Dystrophy Association to Roll Out the 39th Annual MDA Shamrocks Campaign with Retailers Nationwide | |
| Feb 16, 2021 | What To Look For In A Disability Organization | Getty Imagesgetty |
| Feb 9, 2021 | Parent Project Muscular Dystrophy Receives $100,000 Award from Duchenne Research Fund to Address Neurobehavioral Issues in Duchenne | |
| Jan 27, 2021 | Muscular Dystrophy Association Announces Nyheim Hines as 2021 National Spokesperson | |
| Dec 3, 2020 | Nyheim Hines of the Indianapolis Colts to Wear Cleats for Muscular Dystrophy Association on Gameday Sunday, December 6 | |
| Nov 1, 2020 | Gains in tRNAslation: It’s time for investors to realize the potential of European RNA technologies | The main purpose of RNA, known as messenger RNA or mRNA, is to convert (or translate) the genetic information of DNA into proteins. There are many other forms of RNA now recognized, and each a potential target for therapies to combat diseas... |
| Oct 28, 2020 | Muscular Dystrophy Association Launches MOVR Visualization and Reporting Platform to Improve Patient Care and Accelerate Drug Discovery | |
| Oct 22, 2020 | The Marathon Stream for MDA Let's Play For A Cure Airs this Saturday, October 24, Headlined by Zedd with Special Guests missharvey and more | |
| Oct 20, 2020 | Muscular Dystrophy Association Announces Don Cheadle, Common, Cindy Crawford, Whitney Cummings, Stephen Curry, Zachary Levi, & Kelly Rowland To Join The MDA Kevin Hart Kids Telethon | |
| Oct 13, 2020 | After Six-Year Hiatus, Reimagined MDA Kevin Hart Kids Telethon Returns October 24 | The MDA Kevin Hart Kids Telethon will air on Oct. 24 on Hart's LOL Network platform.Getty Images for SiriusXM |
| Oct 8, 2020 | Muscular Dystrophy Association Announces DJ Khaled, Daniel Levy, Leslie Mann, Gabrielle Union Wade, John David Washington & More Will Join The MDA Kevin Hart Kids Telethon Lineup | |
| Sep 29, 2020 | Muscular Dystrophy Association Announces MDA Let's Play For A Cure, A Multi-Week Streaming Event Featuring Special Guests Zedd, Voyboy, Trick2g, JonSandman, missharvey and More | |
| Sep 29, 2020 | Muscular Dystrophy Association’s Let’s Play For A Cure targets gamers | Join gaming leaders, alongside GamesBeat and Facebook Gaming, for their 2nd Annual GamesBeat & Facebook Gaming Summit | GamesBeat: Into the Metaverse 2 this upcoming January 25-27, 2022. Learn more about the event.
The Muscular Dystroph... |
| Sep 29, 2020 | Muscular Dystrophy Association’s Let’s Play For A Cure targets gamers | Did you miss a session from GamesBeat Summit 2022? All sessions are available to stream now. Learn more.
The Muscular Dystrophy Association is launching a multi-week livestreaming event, Let’s Play For A Cure, to raise money for the charita... |
| Sep 9, 2020 | Muscular Dystrophy Association Announces Relaunch of Iconic Telethon Hosted by Actor & Comedian Kevin Hart | |
| Aug 25, 2020 | Muscular Dystrophy Association to Kick off "MDA National Muscular Dystrophy Awareness Month" with Virtual Celebrations | |
| Sep 8, 2019 | Boulder Fire Rescue raises more than $11K for muscular dystrophy research | Next year’s Boulder Fire-Rescue firefighters will have some pretty big boots to fill.
This Labor Day weekend firefighters raised $11,425 for the Muscular Dystrophy Association during the annual Fill the Boot fundraiser.
Fire Lt. Tyler Capro... |
| Jul 12, 2019 | Newborn screening saves lives. Congress needs to reauthorize the program | One of the most successful public health stories in U.S. history — the nation’s newborn screening program — was the subject of a recent reauthorization hearing held by the House Committee on Energy and Commerce.
Each year, just over 4 milli... |
| Oct 12, 2018 | Meeting’s nearly fourfold attendance growth highlights cell, gene therapies’ rise | This was a far cry from the first meeting in 2006, when around 350 scientists huddled for warmth against a hostile world. Early gene therapies had ended in disaster, with the deaths of Jesse Gelsinger and others, and federal restrictions we... |
| Feb 9, 2017 | FDA approves Duchenne muscular dystrophy drug | The U.S. FDA has given the green light to Marathon Pharmaceuticals’ Emflaza (deflazacort), a new treatment for Duchenne muscular dystrophy (DMD).
Announced Thursday, the news could be bittersweet for patients and caregivers.
While it has sh... |
| Dec 12, 2012 | New follistatin gene therapy for muscular dystrophy gets orphan drug status | Milo Biotechnology’s drug is based on technology licensed from Nationwide Children’s Hospital in Columbus, where a Phase 1/2 clinical trial is underway in adult patients with BMD and inclusion body myositis.
It’s not the only muscular dystr... |
| Jul 23, 2012 | Late-stage cystic fibrosis, muscular dystrophy drug raises $30 million | With cystic fibrosis the goal is to improve lung function and reduce pulmonary exacerbation. In a Phase 3 clinical study, Ataluren demonstrated trends in improvement in lung function when compared to a placebo. There were also trends in imp... |
| Sep 29, 2011 | Synapse Biomedical gets FDA approval for ALS breathing system | The company’s NeuRx Diaphragm Pacing System electrically stimulates the diaphragm to contract, simulating a breathing motion, to help patients with inadequate breathing. The FDA approval applies to ALS patients who have stimulatable diaphra... |
| FDA approves Sarepta drug for muscular dystrophy with rare genetic mutation | Thursday’s decision covers patients with a particular genetic mutation that affects an estimated 8% of Duchenne patients. The drug, casimersen, will be marketed under the name Amondys 45.
Duchenne is genetic disorder that renders patients u... |
| FDA approves Duchenne muscular dystrophy drug | The U.S. FDA has given the green light to Marathon Pharmaceuticals’ Emflaza (deflazacort), a new treatment for Duchenne muscular dystrophy (DMD).
Announced Thursday, the news could be bittersweet for patients and caregivers.
While it has sh... |
| Gains in tRNAslation: It’s time for investors to realize the potential of European RNA technologies | “The original is unfaithful to the translation,” — Jorge Luis Borges
Investing in new innovative RNA technologies can lead to rapid value creation, and Europe is a fertile ground to hunt for them. The discovery of DNA and the gene underlies... |
| FDA approves Sarepta drug for muscular dystrophy with rare genetic mutation | The FDA has approved a Sarepta Therapeutics drug for Duchenne muscular dystrophy, clearing the way for the company to commercialize its third therapy for the rare, muscle-wasting disease.
Thursday’s decision covers patients with a particula... |
| Synapse Biomedical gets FDA approval for ALS breathing system | Neurotechnology company Synapse Biomedical has received Humanitarian Device Exemption (HDE) marketing approval from the U.S. Food and Drug Administration for a diaphragm pacing system that helps certain types of patients suffering from amyo... |
| Meeting’s nearly fourfold attendance growth highlights cell, gene therapies’ rise | The Alliance for Regenerative Medicine’s (ARM’s) annual Cell and Gene Meeting needs a bigger boat. Now in its 13th year, the conference attracted more than 1,200 people to Torrey Pines Mesa in San Diego, from October 3 to 5. Last year it dr... |
| New follistatin gene therapy for muscular dystrophy gets orphan drug status | An experimental drug being developed by Milo Biotechnology for the treatment of certain neuromuscular diseases has been given orphan drug designation by the U.S. Food and Drug Administration.
The Cleveland company’s drug candidate, AAV1-FS3... |
