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EURORDIS - European Rare Diseases Organisation
http://www.eurordis.org/Last activity: 27.02.2023
Active
An alliance of over 900 rare disease patient organisations working together to improve the lives of the 30m people living with a rare disease in Europe.
Overview
Location
France, Ile-de-France, Paris
Phone
+33 1 56 53 52 10
Mentions in press and media 8
| Date | Title | Description |
| Sign up to see | Sign up to see | Sign up to see |
| Nov 21, 2022 | APR Applied Pharma Research (a Subsidiary of Relief Therapeutics) is a Finalist in the 2022 Rare Disease International Film Festival | GENEVA, Nov. 21, 2022 /PRNewswire/ -- RELIEF THERAPEUTICS Holding SA (SIX: RLF) (OTCQB: RLFTF) (RLFTD) ("Relief"), a Swiss, commercial-stage biopharmaceutical company identifying, developing and commercializing novel, patent prote... |
| Nov 17, 2022 | Woman with a rare brain disease says doctors repeatedly dismissed her condition, blaming it on mental illness | Simpson in the hospital after being admitted with stroke-like symptoms in January 2021. Courtesy of Daisy Simpson Daisy Simpson, 34, says her brain disease was overlooked due to an earlier psychosis diagnosis. Simpson says she believes the ... |
| Feb 8, 2022 | GenomeUP chiude un seed round da €1,1m | GenomeUp, startup italiana attiva nel settore digital biotech, ha sviluppato JuliaOmix™: un ecosistema di servizi digitali dotati di IA per il supporto alla diagnosi delle malattie genetiche e per la digitalizzazione dei processi di laborat... |
| Feb 29, 2016 | Rare Disease Day focuses on new approach to finding treatment | Rare Disease Day focuses on new approach to finding treatment 29-02-2016 Findacure says it could save the NHS millions of pounds, based on US experience. Two thousand two hundred babies will be born in the UK today (29th February), of which... |
| Aug 25, 2014 | Beyond the ice bucket: Orphan disease patient advocates you should follow on Twitter | [Photo from Flickr user Kymberly Janisch] Promoted This Patient Experience Checklist Is Your Key To Success in 2021 As healthcare systems strive to recover from losses due to the pandemic, patient acquisition and retention have never been m... |
| Beyond the ice bucket: Orphan disease patient advocates you should follow on Twitter | The viral marketing campaign for ALS known as the ice bucket challenge has boosted the profile of rare disease philanthropy and permeated pop culture in a way that orphan diseases typically don’t, from the sublime to the ridiculous. Of cour... | |
| Rare disease patients push for access to treatment in Panama | Reporting for this story was supported by a grant from the National Press Foundation. Panama City, Panama – Maria has lost track of how many times she has seen a healthcare worker over the past three years. But despite innumerable medical c... |
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FAQ about EURORDIS - European Rare Diseases Organisation
What has the press written about EURORDIS - European Rare Diseases Organisation?
Parsers VC has collected 8 articles mentioning EURORDIS - European Rare Diseases Organisation, among them “APR Applied Pharma Research (a Subsidiary of Relief Therapeutics) is a Finalist in the 2022 Rare Disease International Film Festival” (Nov 21, 2022) and “Woman with a rare brain disease says doctors repeatedly dismissed her condition, blaming it on mental illness” (Nov 17, 2022).
Is EURORDIS - European Rare Diseases Organisation still active?
Yes, EURORDIS - European Rare Diseases Organisation is active; its latest activity on Parsers VC dates from Feb 27, 2023.