Dravet Syndrome Foundation

https://dravetfoundation.org/

Last activity: 22.10.2026

Active

Categories: HealthTechMedtechResearch

Since 2009, the mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.

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Mentions

Overview

Location

United States, New Jersey, Cherry Hill Township

Phone

+1 203-392-1955

Mentions in press and media 21

Date	Title	Description
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Jul 29, 2026	Dravet Syndrome Hijacks Brain’s Immune Alarm to Sustain Seizures, Study Finds	By James Whitaker Published: Jul 29 2026, 2:19 PM EDT Share on Facebook Share on Twitter Share on LinkedIn Share on Reddit Share on Flipboard
Jun 29, 2026	Dravet Syndrome Foundation (DSF) Announces 2026 Community Award Winners	DSF Logo DSF proudly honored community members whose leadership and unwavering commitment are driving meaningful progress for families living with Dravet syndrome. The contributions of these individuals and organizations reflect the collabo...
Sep 30, 2025	Record-Breaking 7th Annual Dance for Dravet Raises Over $900,000 in St. Louis for Dravet Syndrome Foundation	Hosted in honor of Anna Odlaug, this year's event raised a record-breaking amount! We are overwhelmed with gratitude for the generosity of St Louis - setting a record with over $900,000 raised this year, and leading the nation in fundraisin...
Sep 24, 2025	Dravet Syndrome Foundation Announces 4 New Grant Awards	DSF Logo Dravet Syndrome Foundation is proud to support 4 grant awards that advance our strategic priorities to meaningfully advance our research roadmap toward a cure. These awards bring us closer to new insights, better treatment options,...
Sep 2, 2025	Marlins for Mason event expectations, bringing in more than $680K for the Dravet Syndrome Foundation	The Prather Family The Prather Family in front of the 2025 Sponsor Banner DSF Logo Since launching in 2023, Marlins for Mason has contributed more than $1.5M to advance Dravet syndrome research. We look forward to another great event in 202...
Dec 18, 2024	Dravet Syndrome Foundation Funds Five New Research Grant Awards totaling $1.4M	New DSF Logo Dravet Syndrome Foundation announced the recipients of their 2024 research grants at their 15th annual Research Roundtable on December 5th in Los Angeles. We are incredibly grateful for the strong support from our donors and su...
Aug 23, 2024	Dravet Syndrome Foundation Partners with Mason's Movement Foundation	DSF Logo Mason's Movement logo This new partnership is aimed at providing additional support to bereaved families within the Dravet syndrome community. Our vision for Mason's Movement is to hold space for those who have lost a child or sibl...
Aug 21, 2024	2nd Annual Marlins for Mason raises over $500,000 for Dravet Syndrome Foundation	Marlins for Mason is a marlin release tournament held in Ocean City, Maryland, to support the Dravet Syndrome Foundation (DSF). We are honored to support the Dravet Syndrome Foundation and hope that our efforts can help change the future of...
May 19, 2023	STRIKE OUT DRAVET BENEFITING THE DRAVET SYNDROME FOUNDATION	On Thursday, May 11th, guests gathered at Kings Dining and Entertainment in the Seaport area of Boston for Strike Out Dravet. BOSTON, MA, UNITED STATES, May 19, 2023/EINPresswire.com/ -- STRIKE OUT DRAVET BENEFITING THE DRAVET SYNDROME FOUN...
Apr 12, 2023	Strike out Dravet benefiting the Dravet Syndrome Foundation	Draft Kings Title Sponsor We acknowledge that our many accomplishments are only through the generosity of our supporters, so we truly appreciate the Boston community rallying behind us for this event.” — Mary Anne Meskis, Executive Director...
Apr 3, 2023	Dravet Syndrome Foundation Announces Board Changes	New President, Vice President, and Secretary; Thanks to our Outgoing Board President; and a New Board Member Welcome As we strive for better outcomes with new treatments and one day a cure for Dravet syndrome, we are excited to add our newe...
Oct 24, 2022	DANCE FOR DRAVET 2022 ST. LOUIS RAISES OVER $460,000 TO BENEFIT THE DRAVET SYNDROME FOUNDATION	Hosted by the Brennan and Odlaug families the event raised over $460,000 and continues to be the largest fundraising event for DSF in the nation. St. Louis continues to show how much they care with their generous support to find a cure for ...
Aug 9, 2022	Dance for Dravet, benefitting the Dravet Syndrome Foundation, scheduled for October 14, 2022	New DSF Logo The 4th annual event to be held at Third Degree Glass in St. Louis, Missouri, with McKelvey Homes as Title Sponsor Let’s raise some money and make a difference in the lives of those suffering from Dravet syndrome and their fami...
Jun 23, 2022	Dravet Syndrome Foundation Launches New Website	New DSF Website Homepage Dravet Syndrome Foundation (DSF), the largest non-governmental funder of Dravet syndrome-specific research, is proud to announce a new website launch today. The new website delivers information in a more accessible ...
Jun 13, 2022	DSF Highlights New Episode of Lifetime® TV’s “Behind the Mystery” Segment of “The Balancing Act®” on Dravet syndrome	Dravet Foundation Logo The extended 30-minute “special edition” live segment follows the diagnosis and treatment journey of a Dravet patient and family. CHERRY HILL, NJ, USA, June 13, 2022 /EINPresswire.com/ -- Today, the Dravet Syndrome Fo...
Jun 9, 2022	Epygenix Therapeutics to Provide Update at the Dravet Syndrome Foundation (DSF) 2022 Conference	PARAMUS, N.J., UNITED STATES, June 9, 2022 /EINPresswire.com/ -- Epygenix Therapeutics, a clinical-stage biopharmaceutical company developing safe, effective, and patient-friendly drugs for rare and intractable forms of genetic epilepsy, wi...
Jun 1, 2022	Dravet Syndrome Foundation Unveils New Brand Identity Reflecting Its Transformation and Strategic Vision	DSF Logo The new look and feel represents the organization’s history and highlights its strategy for the future. This rebranding marks the opportunity to further clarify our mission, programs, and goals, and to share them with our patient c...
Jun 29, 2021	The Grace It Takes—Living with Dravet Syndrome	(BPT) - Grace is a gift. At eight years old, her infectious exuberance for life flashes in her big brown eyes and cheeky smile. She’s also a warrior. You would never know that at just six months old Grace was having hundreds of seizures per...
Sep 18, 2018	23 potential health benefits of dagga - from pain relief to slowing Alzheimer's	(Unsplash) SA's Constitutional Court ruled that personal use of dagga is not a criminal offence. The ruling comes amid new research that shows dagga has significant medical uses. Benefits of dagga include using it to treat chronic pain, sto...
Jun 25, 2018	A drug derived from marijuana has become the first to win federal approval, and experts predict an avalanche effect	Shutterstock Advertisement The Food and Drug Administration approved the first cannabis-derived drug on Wednesday. Called Epidiolex, the GW Pharmaceuticals drug is designed to treat two rare forms of childhood epilepsy using a marijuana com...

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FAQ about Dravet Syndrome Foundation

What has the press written about Dravet Syndrome Foundation?

Parsers VC has collected 21 articles mentioning Dravet Syndrome Foundation, among them “Dravet Syndrome Hijacks Brain’s Immune Alarm to Sustain Seizures, Study Finds” (Jul 29, 2026) and “Dravet Syndrome Foundation (DSF) Announces 2026 Community Award Winners” (Jun 29, 2026).

Is Dravet Syndrome Foundation still active?

Yes, Dravet Syndrome Foundation is active; its latest activity on Parsers VC dates from Oct 22, 2026.