| Date | Title | Description |
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| Sep 9, 2026 | Choroideremia Research Foundation Announces New Research Grants to Advance Understanding and Treatment of CHM | Choroideremia Research Foundation (CRF) Invests in Research to Advance Understanding of Choroideremia (CHM).
Elfride De Baere, MD, PhD, and Bart P. Leroy, MD, PhD.
Matthew Benson, MD.
Malia Edwards, PhD, Abigail Fahim, MD, PhD, and Kathleen... |
| Jul 29, 2026 | CRF Unveils Enhanced Website to Better Connect, Educate, and Empower the Global CHM Community | Explore the redesigned CRF website — a new digital home for the global choroideremia community featuring expanded research resources, patient stories, the Candle CHM Resource Hub, upcoming events, educational tools, and new ways to support ... |
| Jun 9, 2026 | Choroideremia Research Foundation Highlights Candle: A Patient-Developed Resource Hub Advancing Access to CHM Research | Tanish Misra, developer of Candle, a patient-developed resource platform for choroideremia (CHM). The platform integrates clinical trials and published research into a single accessible resource under the guiding theme, “A small light for a... |
| May 26, 2026 | Choroideremia Research Foundation Announces June 30 Research Grant Application Deadline | Graduate student Emily Baum (left) works with Dr. Tom Barker, a 2025 CRF-funded researcher, in his lab at the University of Virginia. Photo by Lathan Goumas, UVA Communications.
The Choroideremia Research Foundation is now accepting grant a... |
| Oct 21, 2025 | Choroideremia Research Foundation Awards Alice Y. Zhang, MD, the 6th Annual Randy Wheelock Research Award | Neal Bench, CRF President, awarding Alice Zhang, MD and colleagues the 2025 Randy Wheelock Award at UNC-Chapel Hill.
CRF honors Dr. Alice Y. Zhang with the 6th Annual Randy Wheelock Research Award for advancing patient-focused outcomes in c... |
| Sep 17, 2025 | The Choroideremia Research Foundation (CRF) Marks 25 Years of Progress, Research, and Community Support | CRF leaders and researchers unite to drive progress in choroideremia research. Pictured (left to right): two collaborating researchers with H. Eric Hartman, CRF Director of Advocacy; Cory MacDonald, CRF Engagement Director; and Jason McKinn... |
| Jul 23, 2025 | Choroideremia Research Foundation Launches Membership Drive Amid 25 Years of Progress and Community | CHM families and friends united at the 2025 CRF International Conference in Bloomington, MN — building community, sharing hope, and driving progress.
Join CRF’s 2025 Membership Drive and be part of 25 years of connection, progress, and purp... |
| Apr 21, 2025 | CHOROIDEREMIA RESEARCH FOUNDATION INVITES PROPOSALS FOR THE 2025 RANDY WHEELOCK RESEARCH AWARD | CRF has funded over $6 million in research studies during its 22-year history.
Proposals related to finding a cure for a rare inherited retinal disease are due by June 30, 2025
With 22 years of growth and advancement, we have much to celebr... |
| Mar 6, 2025 | CHOROIDEREMIA RESEARCH FOUNDATION ANNOUNCES 2025 INTERNATIONAL CONFERENCE: Advancing CHM Research, Treatment and Support | Attendees enjoying CRF Conference 2022
Join us in Minneapolis!
This year’s expanded programming ensures that scientific advancements, patient well-being, and community connection remain at the heart of our mission.”
— Neal Bench, CRF board ... |
| Sep 17, 2024 | CHOROIDEREMIA RESEARCH FOUNDATION ACCELERATES SCIENTIFIC RESEARCH OF RARE INHERITED RETINAL DISEASE WITH THREE GRANTS | David Gamm, MD, PhD
Kathleen Boesze-Battaglia, PhD
The foundation names it’s 4th annual Randy Wheelock Award winner
SPRINGFIELD, MA, UNITED STATES, September 17, 2024 /EINPresswire.com/ -- The Choroideremia Research Foundation (CRF) is plea... |
| Apr 16, 2024 | CHOROIDEREMIA RESEARCH FOUNDATION EXPANDS SCIENTIFIC RESEARCH OF RARE INHERITED RETINAL DISEASE AWARDING THREE GRANTS | Bhanu P. Telugu, PhD
Mariya Moosajee, MBBS, BsC (Hons), PhD, FRCOphth
Robert Casson, Robert James Casson, MB, MS Hons
SPRINGFIELD, MA, UNITED STATES, April 16, 2024 /EINPresswire.com/ -- The Choroideremia Research Foundation (CRF) is please... |
| Feb 1, 2024 | CHOROIDEREMIA RESEARCH FOUNDATION INVITES PROPOSALS FOR THE 2024 RANDY WHEELOCK RESEARCH AWARD | CRF has funded approximately $5 million in research studies during its 23-year history.
Proposals related to finding a cure for a rare inherited retinal disease are due by March 31, 2024
SPRINGFIELD, MA, UNITED STATES, February 1, 2024 /EIN... |
| Nov 15, 2022 | CHOROIDEREMIA RESEARCH FOUNDATION EXPANDS SCIENTIFIC ADVISORY BOARD AND COMMITMENT TO RARE RETINAL DISEASE RESEARCH | Maureen McCall, Ph.D., CRF Scientific Advisory Board member
Rachel M. Huckfeldt, MD, PhD, Scientific Advisory Board Academic Vice Chair
Five New Members Join the Board with Two New Leadership Positions Created
The expanded Scientific Adviso... |
| Oct 13, 2022 | RAISING AWARENESS FOR A RARE DEGERNATIVE RETINAL DISEASE AT THE AAOPT CONFERENCE IN SAN DIEGO OCTOBER 26-29, 2022 | CRF celebrates 22 years of research progress and unwavering commitment to find a cure for a retinal disease that causes blindness
Vision care providers are often the first professionals in a position to identify CHM in their patients and ma... |
| Sep 13, 2022 | BHANU P. TELUGU, PHD RECEIVES 3Rd ANNUAL CRF RANDY WHEELOCK RESEARCH AWARD | Bhanu P. Telugu, PhD, Randy Wheelock Award Winner
Choroideremia Research Foundation supports development of first CHM porcine model to advance research for choroideremia, a rare inherited retinal disease
For the first time, the CRF is excit... |
| Aug 18, 2022 | CHOROIDEREMIA RESEARCH FOUNDATION CO-FUNDS EQUIPMENT TO SUPPORT RESEARCH OF RARE INHERITED RETINAL EYE DISEASE | Jasleen Jolly, DPhil MSc BSc (Hons) MCOptom
MAIA Microperimeter System is a Vital Resource for Clinical Trial Measurement and Tracking of Chorideremia Eye Disease Studies
Dr. Jolly’s work is invaluable to ensure the highest quality and accu... |
| Aug 14, 2022 | THE CRF 2022 INTERNATIONAL CONFERENCE WAS A BRIGHT LIGHT ON NEW RESEARCH INTO A RARE RETINAL DISEASE | 2022 CRF International Conference
Top Researchers in the Field from Around the World Gather with Patients and Families
We are thrilled with the success of this year’s conferences, bringing patients, families, and researchers together for th... |
| Jun 13, 2022 | CHOROIDEREMIA RESEARCH FOUNDATION SUPPORTS RESEARCH INTO FEMALE CARRIERS OF A RARE INHERITED RETINAL DISEASE | Sena Gocuck, MSci, D-OPTOM, MPhil
Ms. Gocuk studies the first longitudinal assessment of progression rates in phenotype categories
We are very excited to support Ms. Gocuk’s work to expand the scientific community’s knowledge about the unkn... |
| Jun 6, 2022 | CHOROIDEREMIA RESEARCH FOUNDATION SUPPORTS RESEARCH INTO CRITICAL PROTEIN RELATED TO RARE INHERITED RETINAL EYE DISEASE | Dr. Vasiliki Kalatzis with Institute for Neurosciences in Montpellier, France
Dr. Vasiliki Kalatzis focuses on the dysregulation of ion channels linked to RPE
Dr. Kalatzis’ research will deepen our knowledge about why damaged vital retinal ... |
| May 23, 2022 | CHOROIDEREMIA RESEARCH FOUNDATION SUPPORTS NEW RESEARCH PATH FOR RARE INHERITED RETINAL EYE DISEASE | Ian MacDonald, MD, CM
Dr. Ian MacDonald applies AON theory to stop aberrant splicing in CHM gene mutations
Dr. MacDonald’s research is a promising new path to treat CHM that would potentially provide an additional treatment option for patie... |
| Apr 27, 2022 | CHOROIDEREMIA RESEARCH FOUNDATION SUPPORTS NEW RESEARCH PATH FOR RARE INHERITED RETINAL EYE DISEASE | Dr. David Gamm, University of Wisconsin, Madison
Dr. David Gamm uses Ace-tRNA readthrough therapy for CHM stop codon/nonsense mutations
Dr. Gamm's proposal investigates other approaches for treating CHM, exploring new research paths that ex... |
| Apr 1, 2022 | CHOROIDEREMIA CONFERENCE RETURNS WITH STRENGTHENED COMMITMENT TO END THIS RARE INHERETED RETINAL DISEASE | Choroideremia Research Foundation celebrates 22 of research progress and unwavering commitment to find a cure for a retinal disease that causes blindness
With 22 years of growth and advancement, we have much to celebrate in our commitment t... |