| Date | Title | Description |
| 27.08.2024 | Prioritizing Areas of Importance to Youth and the Leadership of Young People In Mental Health Research Decision-making | by Isabel Ohakamma, psychology and youth & social innovation major at the University of Virginia and member of Mental Health America’s Youth Policy Accelerator, and Mary Giliberti, Chief Public Policy Officer for Mental Health America
M... |
| 13.08.2024 | PCORI announces $165 million in funding for new health research | Approved awards support patient-centered comparative clinical effectiveness research (CER) on telehealth interventions, heart care and various health concerns
WASHINGTON, Aug. 13, 2024 /PRNewswire/ -- The Patient-Centered Outcomes Research ... |
| 21.06.2024 | ACD Approved for $249,650 Award for Project to Build Upon Prior Work and Empower CCDS Parent Engagement in Research | CTD & GAMT Core Outcome Set Consensus Workshop
Consensus Workshop Voting
ACD has been approved for a $249,650 funding award through the Eugene Washington PCORI Engagement Award Program to fund a two year project.
For the CTD and GAMT pa... |
| 29.05.2024 | Accelerated Cure Project & iConquerMS to Launch the Largest-Ever Study of a Novel Therapy to Treat Fatigue in Multiple Sclerosis | WALTHAM, Mass., May 29, 2024 /PRNewswire/ -- The iConquerMS™ People-Powered Research Network (PPRN) (www.iConquerMS.org), a research initiative of the Accelerated Cure Project (ACP), is partnering with the Department of Veterans Affairs (VA... |
| 01.05.2024 | Prevent Blindness to Host 13th Annual Focus on Eye Health Summit, a Two-Day Virtual Interactive Event, with theme of "Being Seen and Heard" | Registration open for free 13th Annual Prevent Blindness Focus on Eye Health Summit, held virtually, July 10 and 11, 2024.
National nonprofit Prevent Blindness to hold the 2024 Focus on Eye Health Summit, a free virtual interactive event, J... |
| 26.04.2024 | DARTNet Institute Collaborates with Brigham and Women’s Hospital on Asthma Study | New asthma study funded by PCORI
iCARE continues the exploration of methods of improving asthma ... and should complete our understanding of optimal approaches to delivering ICS for rescue therapy”
— Wilson D. Pace, MD
AURORA, COLORADO, USA... |
| 09.03.2024 | The Light Treatment Effectiveness (LITE) Study Reveals Groundbreaking Data on the Effectiveness of Phototherapy | Research Demonstrates that Home Phototherapy is Non-Inferior to Office Phototherapy, with Excellent Effectiveness and Safety in Real World Settings ALEXANDRIA, VA, UNITED STATES, March 9, 2024 /EINPresswire.com/ -- Groundbreaking data prese... |
| 26.01.2024 | Health | Here’s why some high-risk patients aren’t getting drugs to combat COVID | Emily Alpert Reyes | Los Angeles Times (TNS)
As the toll from the COVID-19 pandemic continued to mount, antiviral medications such as Paxlovid were hailed by health officials as an important way to reduce the risk of severe illness or death... |
| 25.09.2023 | Black people are more likely to be physically restrained in emergency rooms, study finds | In the chaotic environment of an emergency room, hospital staffers sometimes face the question of whether to use physical restraints when a patient is experiencing a behavioral crisis. Using restraints is meant to be a last resort in the fa... |
| 03.08.2023 | TytoCare raises $49 million to build out AI-enhanced chronic care | You’re reading the web edition of STAT Health Tech, our guide to how tech is transforming the life sciences. Sign up to get this newsletter delivered in your inbox every Tuesday and Thursday.
Exclusive: TytoCare raises $49 million to build ... |
| 20.07.2023 | I introduced the ADA 35 years ago. Now Congress needs to act to ban a practice that devalues disabled lives | Thirty-five years ago, I was proud to introduce the Americans with Disabilities Act in the House of Representatives, because I know firsthand what it is like to be devalued due to a disability — by society, potential employers, even my pare... |
| 06.02.2023 | Chemical Restraint Use in Foster Care Children Comes Under Scrutiny | CCHR says 25% of foster care children are subjected to psychotropic drugs and calls for increased scrutiny. Medicaid accounts for 80% of all antipsychotic prescriptions in the U.S., costing more than $3.36 billion.
CCHR says 25% of foster c... |
| 11.08.2022 | Why don’t they just do what the evidence says? The challenge and promise of implementation science | The test of a new team-based way to treat bipolar disorder was, by all estimations, a highly successful research effort. Two studies, one in the Department of Veterans Affairs and one in a large HMO, both found significant improvements in o... |
| 15.07.2022 | Implementation of the National Suicide Lifeline Improvement Act | Men's Health Network
Your Head, an Owner's Manual
988 Dialing Code to Go into Effect on July 16 WASHINGTON DC , UNITED STATES , July 15, 2022 /EINPresswire.com/ -- On July 16, 2022, the 988 dialing code will go into effect, routing callers ... |
| 01.06.2022 | Mental Health Watchdog Hosting Webinar: Florida’s Foster Children and the Baker Act | According to the Patient-Centered Outcomes Research Center, every year, tens of thousands of foster youths suffer damage to their health because of being unnecessarily prescribed multiple psychotropic medications.
The headquarters for CCHR ... |
| 18.05.2022 | Proposed “Foster Children Bill of Rights” Could Help Protect Children from Abuse | According to the Patient-Centered Outcomes Research Center, every year, tens of thousands of foster youths suffer damage to their health because of being unnecessarily prescribed multiple psychotropic medications.
The headquarters for CCHR ... |
| 29.12.2021 | Deaths of despair: the unrecognized tragedy of working class immiseration | Given the socioeconomic effects of the ongoing Covid-19 pandemic, it should have come as no surprise that the Centers for Disease Control and Prevention recently reported more than 100,000 drug overdose deaths during the 12-month period end... |
| 22.11.2021 | Her husband died by suicide. She sued his pain doctors — a rare challenge over an opioid dose reduction | For six years, Brent Slone had relied on opioid medication to tame his agonizing pain — and then he ran out. He raced to resolve the hang-up over his prescription. He tracked down old medical records, he called his pain clinic repeatedly, h... |
| 15.04.2021 | It’s time to get health care value assessment right | Trying to gauge the value of new drugs and devices is becoming increasingly important in the U.S. health care system, something that other countries have done explicitly for years.
Pressure to get value assessment right is accelerating. The... |
| 02.03.2021 | What Could Biden’s Possible Bid For A National Health Technology Assessment Entity Look Like? | Healthcare cost and value. Getty |
| 24.03.2020 | People with serious illness can teach us a lot about living with Covid-19 | As the U.S. grapples with a potentially deadly pandemic, it can learn a lot from people like me who are living with serious illness.
Before you throw tomatoes, hear me out. People who live every day with chronic, advanced, and complex illne... |
| 04.01.2019 | Behavioral health innovation two years later: Why is adoption taking so long? | |
| 13.09.2018 | Patient engagement reaches the C-suite | The MedCity ENGAGE conference, taking place Nov. 6-7 in San Diego, will include a panel, “The Rise of the Chief Patient Officer,” featuring Pfizer Head of Global Patient Affairs Roslyn Schneider, Medtronic Diabetes Chief Patient Officer Lou... |
| 22.07.2018 | Why hospitals should be supportive of patients during care transitions | It was a turning point for the man and his family. “This doctor showed us the reality of my father’s condition,” Garrett said, gratefully recalling the physician’s compassion. A month later, her father passed away peacefully at home.
This k... |
| 09.02.2018 | What’s the future of clinical trial design? Medidata sees a blend of virtual and in-person components | Medidata’s fourth-quarter earnings call offered a glimpse of how the company, which develops cloud-based technology and analytics tools to plan and execute clinical studies, envisions the future of clinical trial design. Glen De Vries, cofo... |
| 26.12.2017 | Sickle cell patients fight uphill battle for research, treatment — and compassion | CHICAGO — The day before his 30th birthday, Marqus Valentine was in a panic. “I was so scared for midnight to come rolling around because subconsciously I was like, ‘This is it. Tomorrow’s my last day on earth,’” he said.
Valentine has sick... |
| 02.11.2017 | Paving the way to a patient-centered approach in health care | We once thought of disease and its treatments with a one-size-fits-all mindset. That’s changing, and not just because “personalized medicine” has become the buzz phrase of modern health care. A new era of research delivering truly patient-c... |
| 05.07.2017 | We’re making it too hard to have a ‘good’ death | More and more Americans say they want a “good” death, which usually means dying peacefully at home, surrounded by loved ones. Documents called advance directives can help them achieve that goal by increasing the chances that the care they r... |
| 14.12.2016 | Patient navigators can serve crucial roles in hospitals | As Jane’s 7-year-old daughter, Kelsey, lay in the intensive care unit, shaking from seizures, Jane needed people to listen to her and trust her. Jane — not a textbook — knew which of the five different seizure medicines worked best for Kels... |
| 09.11.2016 | Trump wants to repeal Obamacare. What of payment reform, ACOs, innovation? | Throughout the contentious campaign, Donald Trump repeatedly called Obamacare a “disaster” and promised to repeal it immediately upon taking office.
“On day one of the Trump Administration, we will ask Congress to immediately deliver a full... |
| 02.07.2016 | Lincoln Peak Partners Collaborates with Humana | Lincoln Peak, a healthcare information technology company, will collaborate on two projects awarded by The Patient-Centered Outcomes Research Institute (PCORI). PCORI approved nearly $9 million for two projects designed to show how health p... |
| 13.04.2016 | How one doctor turned to his patients — over pie — to simplify medical advice | What’s a doctor to do when the language of medicine confuses his or her patients and prevents them from getting the care they need? Harness what we’ve been missing in medicine for far too long — the patient perspective.
I’m a family physici... |
| 29.03.2016 | Is the time right for digital therapeutics? | As an example, PCORI (the Patient Centered Outcomes Research Institute) has just announced $22 million in new funding for patient-centered comparative clinical effectiveness projects on low back pain. PCORI is specifically seeking studies t... |
| 05.11.2015 | PCORI taps into patient experience to improve research | Early results are encouraging. For example, many older patients fear the side effects of blood thinners, even though they decrease the incidence of stroke by 50 percent, but an institute study of 12,500 stroke patients with atrial fibrillat... |
| 23.03.2015 | Read this Obamacare analysis and you can ignore every other 5-year ACA anniversary story | What’s in the law?
The 906-page ACA (Public Law 111–148) contains nine titles, each addressing a component of reform; its intent was two-fold: to increase access to “affordable insurance coverage” for those without, and reduce healthcare co... |
| 02.10.2014 | This is why clinicians need to partner with patients instead of seeing them as subjects | Geisinger’s project involves developing a way for sharing genetic lab results with patients. It’s in the first year of a three-year project. Michele Bonhag, a patient investigator, developed questions for the team of researchers to pose to ... |
| 16.01.2014 | 14 health care innovation predictions for 2014 | By Vector Staff
2013 saw an accelerated crumbling of borders and boundaries in health care, fueled by technological and scientific advances. Boundaries between high-tech Western medicine and global health practices have begun blurring in in... |
| 02.01.2014 | 3 healthcare trends patients will notice in the new year | By Westby G. Fisher, MD, FACC
As we enter the New Year, I like to reflect on where we’ve been and where we’re heading in medicine. By far and away, this is the most tumultuous time I have ever experienced in health care. Doctors and nurses ... |
| 30.12.2013 | Three healthcare trends that will become painfully obvious to patients in 2014 | As we enter the New Year, I like to reflect on where we’ve been and where we’re heading in medicine. By far and away, this is the most tumultuous time I have ever experienced in health care. Doctors and nurses appear stressed and downtrodde... |
| 03.05.2013 | Crowdsourcing research ideas from patients finds cost, prevention top of mind | That was the case of the winning entry – a computer app that would translate what happens during a visit to the doctor’s office into in a printable summary of action items for a patient to take home. Fittingly, consumers in a recent Consume... |
| 09.01.2013 | The costs of not-so-shared decision making | By Westby G. Fisher, MD, FACC
This week’s New England Journal of Medicine contains a perspective piece by Emily Oshima Lee, M.A., and Ezekiel J. Emanuel, M.D., Ph.D. entitled "Shared Decision Making to Improve Care and Reduce Costs.&qu... |
| 06.01.2013 | Obamacare’s “shared decision-making” rules take money from docs without helping patients | What a nice, lovely, fuzzy bunny. Who couldn’t want such “shared” decisions in complex medical care? Especially nice simple teaching aids for Medicare’s top 20 procedures printed at the “8th grade level” that are “brief?”
Doctors, don’t you... |
| 19.12.2012 | Mayo Clinic, Children’s Hospital of Philadelphia among first to win PCORI grant money | It took awhile but the White House decided to take back the label Obamacare and put a positive spin on it. The administration’s next marketing campaign should be around PCORI. It doesn’t roll off the tongue, but the Patient Centered Outcome... |
| 21.09.2012 | 3 Terms of Healthcare Verbal Wizardry | Three terms of healthcare verbal wizardry that serve as a tool for resetting our expectations from a profit driven health care system run amok
In his dissenting opinion on the health care law, my least favorite Justice, Antonin Scalia, argu... |
| 19.07.2012 | The Affordable Care Act: Implications for Emerging Med Tech Companies | Primary care services are slated for increased reimbursement and bonuses under the ACA, not that a lot of expensive devices are used in this setting. Wouldn’t be a stretch to imagine an increase in routine point of care testing with the enc... |
| 04.03.2012 | Attack of the acronyms: PCORI and IPAB may doom new treatments | First, the good news. Last year, a study published in the New England Journal of Medicine revealed that patients treated with Zelboraf posted a 20-percent improvement in six-month survival rates compared to patients on alternate drugs — and... |
| - | Mayo Clinic, Children’s Hospital of Philadelphia among first to win PCORI grant money | It took awhile but the White House decided to take back the label Obamacare and put a positive spin on it. The administration’s next marketing campaign should be around PCORI. It doesn’t roll off the tongue, but the Patient Centered Outcome... |
| - | Is the time right for digital therapeutics? | Over the last several days I have seen numerous articles and had numerous conversations about treatment and prevention approaches meant specifically to replace FDA-approved pills and surgical interventions. Mostly these alternatives come in... |
| - | Read this Obamacare analysis and you can ignore every other 5-year ACA anniversary story | The following post originally appears in Pulse Weekly, a weekly take on the industry from Paul Keckley and the Navigant Healthcare Center for Research and Policy.
Five years ago today, The Patient Protection and Affordable Care Act (PPACA),... |
| - | Obamacare’s “shared decision-making” rules take money from docs without helping patients | This week’s New England Journal of Medicine contains a perspective piece by Emily Oshima Lee, M.A., and Ezekiel J. Emanuel, M.D., Ph.D. entitled “Shared Decision Making to Improve Care and Reduce Costs.” The original paragraph of the piece ... |
| - | Crowdsourcing research ideas from patients finds cost, prevention top of mind | The Regenstrief Institute, an informatics and healthcare research foundation affiliated with the Indiana University School of Medicine, recently did something PCORI would approve of. It asked patients across the country for their ideas on h... |
| - | What’s the future of clinical trial design? Medidata sees a blend of virtual and in-person components | Medidata’s fourth-quarter earnings call offered a glimpse of how the company, which develops cloud-based technology and analytics tools to plan and execute clinical studies, envisions the future of clinical trial design. Glen De Vries, cofo... |
| - | Three healthcare trends that will become painfully obvious to patients in 2014 | As we enter the New Year, I like to reflect on where we’ve been and where we’re heading in medicine. By far and away, this is the most tumultuous time I have ever experienced in health care. Doctors and nurses appear stressed and downtrodde... |
| - | Why hospitals should be supportive of patients during care transitions | The kidney doctor sat next to Judy Garrett’s father, looking into his face, her hand on his arm. There are things I can do for you, she told the 87-year-old man, but if I do them I’m not sure you will like me very much.
The word “death” was... |
| - | PCORI taps into patient experience to improve research | It’s a program set up by the federal health law that many people have never heard about: an independent organization charged with bringing health care professionals and patients together in cooperative research ventures to find the best tre... |
| - | Attack of the acronyms: PCORI and IPAB may doom new treatments | The battle against skin cancer just became a bit more complicated.
Researchers found that Zelboraf — a promising new drug that attacks advanced-stage metastatic melanoma — may speed the development of a different but more easily treatable f... |
| - | This is why clinicians need to partner with patients instead of seeing them as subjects | The desire by patients to take control of their data combined with the growth of personalized medicine raises an interesting question? What’s the best way for doctors to give patients genetic test results? Readmission is also a vexing issue... |
| - | Patient engagement reaches the C-suite | Companies often say their most important resource is their people, meaning employees. But for healthcare companies – including drugmakers, device manufacturers and payers – that can just as easily refer to patients as well.
Enter the chief ... |
| - | The Affordable Care Act: Implications for Emerging Med Tech Companies | Most Americans, even the smart ones, are still scratching their heads about what the Affordable Care Act (full name “Patient Protection and Affordable Care Act”, acronym ACA) means for them. As a healthcare consumer, I have the year 2014 in... |
| - | Trump wants to repeal Obamacare. What of payment reform, ACOs, innovation? | Throughout the contentious campaign, Donald Trump repeatedly called Obamacare a “disaster” and promised to repeal it immediately upon taking office.
“On day one of the Trump Administration, we will ask Congress to immediately deliver a full... |
